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Danielle Alvarado 

Special Needs Consultant & Advocate

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Happy March!!! Just saying hi !!!

Posted by Danielle Alvarado on March 6, 2010 at 6:19 PM Comments comments (0)

I am sorry I haven't written in awhile my son, Anthony was diagnosed with a heart condition, called, Long QT Syndrome, I am putting a description for anyone who has never heard of it:

 

Long QT syndrome (LQTS) is a heart rhythm disorder that can potentially cause fast, chaotic heartbeats. These rapid heartbeats may trigger a sudden fainting spell or seizure. In some cases, your heart may beat erratically for so long that it can cause sudden death.

You can be born with a genetic mutation that puts you at risk of long QT syndrome. In addition, certain medications and medical conditions may cause long QT syndrome.

Long QT syndrome is treatable. You may need to limit your physical activity, avoid medications known to cause prolonged Q-T intervals or take medications to prevent a chaotic heart rhythm. Some people with long QT syndrome need surgery or an implantable device.

 

I was really shocked and surprised at the diagnosis, as it was found through an EKG, and alot of the time, it is found through an autopsy, very scary!!!! I think everyone if there are issues in your family or even if there is not, should when you have a physical, get an EKG done and if you are experiencing heart racing, or palpatations get to your Dr. and let them check you out!!

 

Anthony does not talk, but he is doing so much better, as they put him on a Beta Blocker, and he is even calmer!!! I hope you all are doing well, and are surviving your days though they may be stressed, take a few moments to enjoy, as Anthony though he can be very challenging and constant, I am so happy we discovered this issue as now he should be ok, and live a long life!!

 

I just want you to know if you need to vent or as always have something to share, feel free and let me know.  Stay Well, and til the next time, BYE!!! Danielle

Happy New Year!!!!

Posted by Danielle Alvarado on January 1, 2010 at 2:37 PM Comments comments (1)

Hi everyone!! Happy New Year!! well... a new year has begun, and with it a whole new year of experiences with our kids. My thought is, be positive and look toward the fun and yes.. sometimes stressful, but always rewarding times! If we all stick together as parents, we will  have a great new year!! as always if you need to vent or feel there is something you think the disabled community needs to know, please speak up!! Blog it here! Maybe...... this year we will get closer to discovering what causes this mystery we call Autism. Stay Positive and know there are people who care! If you need anything, let me know!!! God Bless!! Danielle Alvarado:) You Are Not Alone!!!!

autistic adults!!

Posted by Danielle Alvarado on October 24, 2009 at 5:54 PM Comments comments (0)

I have been thinking a lot about when our kids become full fledge autistic adults, and how many Dr.'s are not prepared to help this age of autistic people, we see alot of referrals to Dr.'s but most do not know where to begin. please if you are a Dr. whom treats adults (older than 22) please post a comment, we need you and your expertise. Thank You!!!!

life with Autism.....

Posted by Danielle Alvarado on October 21, 2009 at 10:44 AM Comments comments (9)

Hi, as you can see from my site, I am the parent to four boys with Autism, all different levels. I want parents to know that it does have it's ups and downs but, it has some great learning experiences and beautiful moments.  Keep positive and remember you as parents are not alone and even if you do not contact me for guidance, there are many support groups for familiy members and individuals with Autism, you just need to reach out!! Have a great day!!! Danielle


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