|Posted by daniellealvarado on January 2, 2013 at 3:45 AM||comments (1)|
This poem is written by my son Jonathan he is 25 and has Aspergers, he has recently moved to supported living as is doing wonderful but, its been hard. He writes beautiful poetry and will be posting one weekly on different things, enjoy....
I wish I could go back,
To a time more simpler than this,
To call upon a genie
That would grant me a wish.
What would i ask for,
That would change things here?
Not a whole lot,
Except Maybe another year.
One more year,
To live my life that I love so,
And one more year to visit.
Those places Ive always wanted to go.
One more year,
To be with family and friends,
And one more year to live it up,
Before it all ends.
I would make this wish,
And i would never forget,
Because life is a gift,
Without the regrets.
I love you Mom.
I love you Dad.
Your're the best parents ever,
The best I'll ever have.
I wish I could go back,
To a time more simple than this.
To be with you guys,
Whom I still love and miss....
By: Jonathan Tibbetts
|Posted by daniellealvarado on January 1, 2013 at 7:00 PM||comments (0)|
My life is passing by,
The years gone so fast.
So I look to my future,
And forget the past.
When life runs it course,
And opportunities pass you by,
You start to think of what you missed,
And what to do before you die.
I used to think
That life would come to me,
But when I opened my eyes at last,
I was finally able to see.
Without love & happiness,
You’ll always stay adrift.
Because this thing we all call life,
Is God’s ultimate gift.
@December 26th, 2012
|Posted by daniellealvarado on May 26, 2012 at 7:15 PM||comments (1)|
WELCOME TO HOLLAND
Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
|Posted by daniellealvarado on May 26, 2012 at 7:10 PM||comments (0)|
Dear Jerry Brown,
My name is Braulio Alvarado. I am 19 years old and a student of Artesia High School. I have researched many of great a beneficial thing you have done for California since your start of your second term. You have helped with your major investments in California’s education system. Both for k-12 and for higher education. Thanks to you our education has quadrupled. You have increased funding and teacher training. Most students are set for when they graduate high school. They will have a better chance to go to college and do great things. You have hit every point except one. What about those who can’t go one to college because of their mental state. As you may have guessed I am talking about Disabled Americans. You may think to yourself why I would care about Disabled adults. It is because I am one if the disabled Americans. I was diagnosed with Tourette’s Syndrome and Asperger’s Syndrome which is a milder case of autism. I also am one of the very few who have sensory disorder and can talk about the pain my 5 senses causes me. I am not going to tell you some sad story on how my life was horrible because of my disability well because it was not thanks to my mom and dad. It was exponentially hard. Mr. Brown you don’t know what it feels like to not be able comprehend why people treat Disable Americans different. The disabled population is rapidly growing. 19 years ago before I was born it was a 1 and every 10,000 to 15,000 kids would be diagnosed with autism. Then it was 1 in every 110 and now it is 1 in every 88 people. That is a 600% increase in 21 years. Do you realize what it will be like in 10 to 15 years? I know there are day programs for disabled kids but if you ever went in one announced you would be horrified on what 75% of the programs are like when they are not being watched. What I did not tell you is that I have one of the rarest types of families in California. I am not just the only disabled person in my family. I have 3 brothers all with severe autism. One unparticular who is 21 years old who has the brain capacity of a 3 year old. He does not know how to do anything on his own. I really worry what will happen to him when my parents die. Will he be thrown in one of this states “Great” Group homes or just put on the street so we save money. Mr. Brown how would you feel if your brother Jack or your Sister Wanda Lou pooped in their pants or drooled none stop? What if jack could not pick out his clothes? How would you feel if every day you woke up you knew no matter how many programs you passed or slashed your brother could never be able to say he loved you or good night? I don’t expect you to understand nor do I want this to happen to you, but we need more programs for them. They may not be able to ever be employed and make this country money but they are the hardest workers alive. I work in a disabled class as a teacher’s assistant a man do I see miracles’. I see these kid say try and try to say hi or I love you to their mom. I have seen them fail hundreds of times, but you know what they are what true genius is. I call them genius not by their brain but the greatest quality. I the ability to never give up. Just 3 months ago a miracle happened my 21 year old brother was standing in the middle of the kitchen and my mom gives him a huge before he goes to school and out of nowhere I here in a very low mumble “I LOVE YOU.” I dropped my backpack and looked at my mom she started to cry. It took 21 years for him to say what it would take a person with no disability 2 to 2 ½ years. These kids they are the greatest people. I coach Special Olympics and every time I go there I see Miracles happen. They have a saying in Special Olympics it goes “Let me win. But if I cannot let me be brave in the attempt.” They are true heroes. They never back down. They need help. The programs are so bad they range from kids sitting in poops all day to the kids being abused. Can you imagine what it would be like to be hurt and never be able to say to your parents I’m in really bad pain or my heart hurts? I just want these kids to have a chance to have a safe life after their parents are gone. I don’t really know if you are just going to put this in the trash or with the other thousands of papers you get, but just remember 3 things please and do me a favor. 1st never think these kids have tried all they can because they will never give up and stop trying. The only person who is giving up is the people working with them. 2nd Next time you are create a new program for student or schools remember that they are just as much citizens as anyone else. 3rd they can’t speak up and say they had a bad day or the class does not help at me at all but you can be there voice that’s what you do right you are here to help California. They are the greatest people in the world they just need a chance. The only thing I need you to do is do your best to create a better more structure programs for Disabled Americans.
Thank you for your time
Braulio Phillip Alvarado
|Posted by daniellealvarado on January 3, 2012 at 1:55 PM||comments (0)|
Welcome to 2012!!! Hope everyone is doing well....Life has been very busy over the past year, with some great success. I would love to get parents, educators, and the like to tell me about transition programs, and what has worked for everyone. I have seen alot over the last 12 months and I am not super impressed. Please let me know and I think it would bring interest to the community here.. I am praying we all have a great, productive new year and remember if you need help or advice PLEASE, give me a call. I may just be able to help, as NOTHING, is impossible when you give it your all!!! Happy New Year!!! Danielle
|Posted by daniellealvarado on February 2, 2011 at 9:48 PM||comments (1)|
This Poem is written by my oldest son, Jonathan, he is 23 1/2. He has given me permission to post it. It was written about his brother Anthony! Its beautiful........
God has chosen, to be loving and giving
and on April 5th, 1991, he gave me an autistic sibling.
I didnt know why, I deserved an autistic brother
we grew together, he was my active other.
He runs through the house, flinging his toys
He loves TMNT, in this household of boys.
He loves flags, of red, white and blue.
He's very patriotic, that much is true.
He may not be like others, because he is unique within
But, I'm glad I have got him.
I dont know why, god chose me.
But with millions of others
we are our own family, in this life of fish in the sea.
It's like a great giving, and a sacrifice as well.
But of all, it makes me special.
And this is why, above all the rest,
I thank you god, for now....I am blessed!!
|Posted by daniellealvarado on January 17, 2011 at 10:27 PM||comments (0)|
Hi everyone! Hope all is going well for everyone out there. I wanted to update my blog and say I have been busy working with the kids, and have been talking with a lot of people whom are really concerned with the services for our older Autistic kids and for services for the kids with mental health issues. Ya know I have been saying for a couple years now that, soon we will all see a world with a large adult autistic population, and were no one seems ready, well I am concerned with young kids as well as adults!!
We seem to be losing services left and right!! Let me know your thoughts on this and if anyone has suggestions of Dr.'s or programs, give us a loud shout out!! We need it!!
I just want you all to know, things get hard but ya know in the end it will be ok, I have had some moments with my son and i have pulled through..Hang in there and if you need something I am here, if you dont want to speak here, you can email me at [email protected] Some people seem more comfortable doing that. Either way if you have suggestions, please reach out!! Take care and know your not alone..
Talk soon, Danielle
|Posted by daniellealvarado on July 24, 2010 at 9:53 PM||comments (0)|
Hi everyone, summer is in full swing and summer school is letting out, time to find things to do!!! I have a recommendation, your local adaptive programs, for myself the city of Cerritos offers amazing adaptive sports to do, and after watching some of these people work with my kids, you will be really pleased. Also the "yellow Pages for Kids" are another great place. Keep your heads up, think positive and try to enjoy the summer, school is just around the corner!!! Stay cool and any suggestions just give us a shout!!! Take Care!!
|Posted by daniellealvarado on May 9, 2010 at 9:15 PM||comments (1)|
Hi everyone, I hope your all having a very nice day. I wanted to tell you all that today of all days we know now why we even have this day!! :lol:LOL just look at the rest of the year!!! Kidding aside I hope you all are hanging in there and can find happiness, you deserve it, so to all the moms out there, and I would personally like to thank mine< Thanks Mom, for giving me drive and determination to do what so many moms do, Thanks!! Happy Mothers Day!! God Bless!!:)
|Posted by daniellealvarado on March 6, 2010 at 6:19 PM||comments (0)|
I am sorry I haven't written in awhile my son, Anthony was diagnosed with a heart condition, called, Long QT Syndrome, I am putting a description for anyone who has never heard of it:
Long QT syndrome (LQTS) is a heart rhythm disorder that can potentially cause fast, chaotic heartbeats. These rapid heartbeats may trigger a sudden fainting spell or seizure. In some cases, your heart may beat erratically for so long that it can cause sudden death.
You can be born with a genetic mutation that puts you at risk of long QT syndrome. In addition, certain medications and medical conditions may cause long QT syndrome.
Long QT syndrome is treatable. You may need to limit your physical activity, avoid medications known to cause prolonged Q-T intervals or take medications to prevent a chaotic heart rhythm. Some people with long QT syndrome need surgery or an implantable device.
I was really shocked and surprised at the diagnosis, as it was found through an EKG, and alot of the time, it is found through an autopsy, very scary!!!! I think everyone if there are issues in your family or even if there is not, should when you have a physical, get an EKG done and if you are experiencing heart racing, or palpatations get to your Dr. and let them check you out!!
Anthony does not talk, but he is doing so much better, as they put him on a Beta Blocker, and he is even calmer!!! I hope you all are doing well, and are surviving your days though they may be stressed, take a few moments to enjoy, as Anthony though he can be very challenging and constant, I am so happy we discovered this issue as now he should be ok, and live a long life!!
I just want you to know if you need to vent or as always have something to share, feel free and let me know. Stay Well, and til the next time, BYE!!! Danielle